October is Augmentative Alternative (AAC) Awareness month. It is also the month annually that I have to resubscribe to the website building program I use to write and host this blog. The overlap strikes me as appropriate. My blog has slowly migrated into a site that focuses on Nathaniel and his need for communication; it is meaningful that I yearly recommit to sharing that journey during AAC awareness month.

Nathaniel's medical conditions stole time from being a student this week. He has recently experienced some complications with his trach stoma, and we think he might have a respiratory infection. Thankfully, we've managed at home, which is a huge improvement for this kid who used to need ICU support for minor viruses. But we've been to the doctor a number of times and have added additional treatments to our routine. He hasn't been sleeping well, which means I haven't slept well.

We are like every other AAC family.

Despite all the blog posts I've written this month about providing an AAC immersion educational setting for kindergarten at home for our son, we struggle daily. Sometimes we go long stretches of the day without modeling language on Nathaniel's device. There are times we have to search for the device to advert a communication frustration meltdown. Sometimes we leave the device in the car. Under the bed. In the other room. Sometimes we are too tired, too hurried, to doubtful that this will really work.

Like other AAC families, we need constant encouragement to keep on keeping on.

We need simple ideas of incorporating language into our lives that require little set up, little clean up, and no expense.

We are using PrACCtical AAC's list of core words for our July augmentative and alternative communication work with Nathaniel. My goal is do one fifteen to twenty minute activity per day that allows me to model the words and motivate Nathaniel to use his device and learn new language skills. There are twelve words in the list; that is a lot to take on all at once. I've found success with focusing on four words per week for three weeks and then having the last week of the month to mix it all up and revisit some of our favorite activities. The words we are worked on this week were FIND, COLOR, AND, and LOVE. Nathaniel loves to speak in one word utterances and let his communication partner do the work, but he more than capable of two to three word utterances; longer utterances are emerging. I tend to model between three and five word phrases and sentences. He is becoming aware of pronoun use, present progressive verb endings, and adding a plural s.

I know it has been a long time since I posted on the blog when I can not remember my log in password. I have many topics for blog posts floating around in my head; I haven't made writing a priority this last month.

I am going to ease back into blogging. Nathaniel and I participated in a week long challenge to share photos that represent the hash tag #seemeseemyaac. The goal of the Facebook campaign was to bring awareness of alternative and augmented communication. People participated from all over the world. Pretty cool. Here are our photos and the snippets of information I shared with each photo about our AAC efforts.

I am learning a multitude of ways not to teach and help Nathaniel. I wrote a lengthy blog post in September about starting to memorize bible verses with him. Seven months later, I have learned that approach did not work. Or perhaps it is better stated that in recent months my goals have changed, and so my approach needs to change too. If this topic is new to you, click on the link above to learn where we started.

I knew as I walked out of the Pediatric Intensive Care Unit in November that Nathaniel would recover from the acute illness requiring swift intervention. His body was already responding to the IV fluids. However, I also knew that my heart will never recover. There is no ointment or medicine or surgery that can fix how it breaks when I have to pin Nathaniel’s little body to an emergency room gurney and hear him plead with his voiceless screams and beg with his searching eyes for the procedures to stop.