Nathaniel's Airway
I have mentioned Nathaniel's airway difficulties in other blog posts. With our upcoming trip to Cincinnati Children's Hospital Aerodigestive Center, I want to explain his conditions as we understand them today.
Our local medical team has diagnosed Nathaniel with congenital stage 3 subglottic stenosis with a laryngeal web. The subglottic area of the trachea is directly below the vocal cords. Stenosis means narrowing. Staging is rated 1-4; stage 4 is completely closed.
Remembering Our First Weeks with Nathaniel
We were chosen as Nathaniel's adoptive family on June 27, 2013. We spent the month of July learning about his care and preparing to transition him to our home. We teased that we had a one month pregnancy, but in reality it was even shorter because we took a previously scheduled vacation for a week mid July.
We needed EVERYTHING. I remember feeling very overwhelmed when Rich and I walked into Babies R Us early that July. Baby-hood had changed a great deal since we had prepared for our last child fourteen years earlier; even greater changes were noted since we had prepared for our first child twenty-three years earlier. When my other children were little, I had fallen in love with soft baby yellow. I searched for yellow sleepers and yellow receiving blankets. I learned quickly that 21st century baby world is genderized pink and blue.
Back to Ohio in August and an Offer You Won't Want to Miss
I received a phone call last week confirming dates in August that we will return to Ohio. Nathaniel has been accepted as a patient at Cincinnati Children's Hospital Aerodigestive Center. We will be in Cincinnati for a week, August 17-21 for his initial evaluation appointments.
Why Cincinnati Children's?
Short story: It is the world leader in pediatric airway reconstruction. Skip to the bottom of this post for the offer.
Long Story: read on.
Vacationing in Lakeside 2015 - Part Two
I know Nathaniel's private duty nurses and therapists are watching the blog for information how he is doing on the trip. My first Lakeside post was read and shared far more than I expected, but I doubt it gave Nathaniel's people back home the nitty-gritty details they want. Here you go, Team Nathaniel. This one is for you.
Nathaniel's week in four words: He is doing great.
Vacationing in Lakeside 2015 - Part 1
I can walk you past four generations of Lakeside cottages on my father's side of the family and three generations worth on my mother's side. "A Place Like the Whole World Ought to Be" was the slogan I heard repeatedly as a child of my hometown on the shore of Lake Erie. Most people experienced the Lakeside Chautauqua for a week of vacation; I became a year around resident at age eight when my parents divorced. When a child grows up in the place the whole world ought to be like, she thinks differently of the world. Every time I come home I realize a bit deeper how place influences who we are and who we become.
Emergency Information Inside
I am super excited to share this brief post. The ideas here have been brewing in my head for a long time. There is something about knowing we are taking Nathaniel on vacation that has me really focusing on emergency preparedness. Here we have home field advantage. Our first responders know us well. His doctors are familiar with his case. Even their partners. A national ranking Children's Hospital, with detailed records of his medical history, is in this city. I am feeling the heaviness of hitting the road and playing a series of away games. But play is what we want to do on vacation and my hope is that by putting some extra precautions in place now, we can relax and enjoy our trip.
If This Were an Actual Emergency...
Want to take a stab at which of my blog posts is the most popular?
Most of my readers would probably guess it to be a post about Nathaniel. His airway emergency in May had over a thousand views within ten hours. Posts about his hospital stay later that same month were equally visited. The post introducing him on adoption day had seven hundred views the first week.
But the most frequented page on my blog is not about Nathaniel. It is... drum roll....
Two Years of Knowing Nathaniel
Two years ago this morning we met Nathaniel.
When these days come up, I realize how new I still am to adoption. Which day is suppose to be the most significant? The day we learned he was our son? The day we met him? The day he came home? The day his adoption was finalized? This one, the first time we met and held him, feels so important.
The Cowboy and Calculated Risk
We were driving back from meeting Ellie's mom on Saturday when my phone rang. An unknown number in Wyoming. My heart quickens when I see these things. Our son, Andrew, is a cowboy in Wyoming and two weeks ago was Colt Starting Week Clinic. He was responsible for putting first, second and third rides on colts that were previously only halter broke. Last week he continued to work with those three horses, and seven other equally fresh beasts, day after day by himself ten miles down a dirt road from the next ranch employee. Unknown phone numbers from Wyoming could be a hospital, or a doctor, or his boss. Either could be delivering bad news.
Or it could be Andrew borrowing someone's phone to ask his mom how to order a shirt by the neck size. Breathe.