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Two Years of Knowing Nathaniel

Two years ago this morning we met Nathaniel.

When these days come up, I realize how new I still am to adoption. Which day is suppose to be the most significant? The day we learned he was our son? The day we met him? The day he came home? The day his adoption was finalized? This one, the first time we met and held him, feels so important.

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The Cowboy and Calculated Risk

We were driving back from meeting Ellie's mom on Saturday when my phone rang. An unknown number in Wyoming. My heart quickens when I see these things. Our son, Andrew, is a cowboy in Wyoming and two weeks ago was Colt Starting Week Clinic. He was responsible for putting first, second and third rides on colts that were previously only halter broke. Last week he continued to work with those three horses, and seven other equally fresh beasts, day after day by himself ten miles down a dirt road from the next ranch employee. Unknown phone numbers from Wyoming could be a hospital, or a doctor, or his boss. Either could be delivering bad news.

Or it could be Andrew borrowing someone's phone to ask his mom how to order a shirt by the neck size. Breathe.

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How a Math Teacher Raises a Writer: Reflections for Father's Day

While working on my masters in Composition and Rhetoric, I spent a semester writing about my experiences with literacy - the stories, people, and moments that shaped my view of reading and writing. The following are experts from that larger work; each story centers on the role my father had in the formation of my literacy practices.

The weekly walks to and from the public library with mom were full of laughter, skipping, and splashing in puddles. In my memory, Concord’s weather was always post-storm, blue-sky sunny with a few lingering puddles for the children’s sake. I have no memories of the library itself, only the route there and back. Our limit of books was determined by what we could carry. Perhaps backpacks and totes were used on the other side of town; rough brown cardboard boxes from the grocery store were our containers of choice. Once home, a small room off the living room served as our own library. My older brother, Ed, and I would carefully place the books on the long built-in bookshelf under the two large wood windows.  For hours while Ed was off at kindergarten, I would sit alone on the hardwood floor reading. Oddly, I do not remember if I could actually read. 

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St. Louis Trip

St. Louis.  One full week.  Full of Pottery and Jumbo Marshmallows. Best time ever! Never before have I watched Sound Of Music sitting on a bed with a huge soda in hand. I don't think I will ever forget my time in St. Louis.

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How a Family Builds an In-Law Suite and Ends Up With a Nursery...

In 2009 we added a six hundred square foot addition on our home. Rich's mother had just passed away and while neither of us had strong opinions on having our parents live with us, neither of us wanted his father grieving alone. We offered space and assisted living type support in our home. Grandpa accepted.

Working on Grandpa's new room was all our family did that summer. A son moved back from Florida to participate in the construction. A future son-in-law proved his loyalty with long days of concrete work. Our then ten-, fourteen-, fifteen-, and sixteen-year-old sons grew up quickly. We swung sledgehammers, lifted walls, reached for roof trusses, set windows, ran electrical lines and hung drywall. It was a labor of love and changed us. As a family and individuals. The construction project set pieces of Grandpa's heart right again as he was drawn out of his grief and into meaningful work and something bigger than than himself - the power of a family working together.

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How is Nathaniel Doing?

I am amazed how many people follow Nathaniel's and our family's story. Almost weekly at church someone we don't know will approach and want an update. Last night I realized I have this "other" category for Facebook messages. I am not sure why some messages go to my inbox and some to other. (If you know why, please tell me in the comment section below!) There were over twenty messages waiting in that other folder, some dated back to April in Nathaniel had hand surgery; all of them notes of encouragement, prayer, and kind words about sharing Nathaniel's story through this blog. They made me cry. You are all so genuine and so faithful to show support. Thank you for reading. Thank you for liking Facebook posts. For letting us know you are praying. It makes a difference.

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"I'm Mom..."

Three times it happened during Nathaniel's recent hospitalization.

"He's in here with Grandma," said the Emergency Room attending to the resident as they discussed Nathaniel's case outside the partially opened thick sliding glass door.

"Are you hanging out with Grandma, today?" the respiratory therapist asked Nathaniel when she came into his room to administer a treatment.

"Grandma, will you be staying the night instead of Mom?" asked a night nurse new to Nathaniel's case just after shift change.

"I'm Mom," I replied.

Once I added a smack, "A twenty-something Mom or Dad couldn't handle this kid."

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Help Wanted: Day Nurse

I mentioned in my last post that for almost two years, we have used the majority of our private duty nursing hours for overnights. Life with private duty nursing has been quite the journey. Night nursing? A whole different ball game in itself. We have had twenty-nine nurses. I have caught seventeen different nurses sleeping; they were immediately removed from Nathaniel's case. A handful of nurses that worked well for us either moved out of town or faced some other personal life change that caused them to leave our job and home health. Another small handful of nurses were skilled, but just not the right fit for us. Non-nursing issues, like a nurse's clothing and belongings smelling like cigarette smoke, can become intolerable when the workplace is our private home.

For all our struggle with finding night nurses, we have had the opposite experience with day nurses. Nathaniel has had just a few since coming home.

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Sometimes We Sleep

Our night nurse arrived at ten last night and we were in bed by 10:25 pm. She left at eight this morning. We crawled out of bed at 7:36 am. Nine hours of sleep. Rich and I both needed it. Nine hours is a good night of sleep for parents of a two year old. It is a very good, rarely experienced night sleep for parents of a trached two year old. It means everything that possibly could have gone wrong went right instead. It means a nurse was on duty. It means the room air compressor, oxygen concentrator, pulse oximetry, heated humidity, and feeding pump - the machines Nathaniel requires at night - worked properly. It means Nathaniel settled back into sleep with a few pats on the bottom or by repositioning himself after waking. It means the night went as we had planned and prayed.

We plan to hibernate on Friday nights weekly.

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