Remembering Our First Weeks with Nathaniel

We were chosen as Nathaniel's adoptive family on June 27, 2013. We spent the month of July learning about his care and preparing to transition him to our home. We teased that we had a one month pregnancy, but in reality it was even shorter because we took a previously scheduled vacation for a week mid July.

We needed EVERYTHING. I remember feeling very overwhelmed when Rich and I walked into Babies R Us early that July. Baby-hood had changed a great deal since we had prepared for our last child fourteen years earlier; even greater changes were noted since we had prepared for our first child twenty-three years earlier. When my other children were little, I had fallen in love with soft baby yellow. I searched for yellow sleepers and yellow receiving blankets. I learned quickly that 21st century baby world is genderized pink and blue.

Augmented Communication - Part 5: MOMMY and 216 Other Words

Ben, Nathaniel and I went to Lowe's this week. Nathaniel had his talker in the cart and when the cashier started talking to him, I reached over and used the talker to say HI on his behalf. It is the easiest way to let someone know he is not going to respond verbally. Most often, hearing the talker catches people off guard and I can quickly sense the individual's familiarity and comfort with special needs children. The cashier came alive when she heard the device. She had questions. By the end of our transaction, she had shared that her own son has Down's Syndrome and was given a Speech Generating Device (SGD). He does not use it because he was teased and told it was for babies. She wanted more information. We wrote down the name of the app, name of my website, and the name of Nathaniel's new Facebook page.

Nathaniel Wrist Bands

Nathaniel is headed to Cincinnati Children's Hospital in August for an evaluation of his airway. He has a huge team of family, friends, medical professionals, and even strangers who follow his story and are genuinely concerned about his well-being. We do not take that for granted. If you are reading this, you are part of that team. We want you to know how much you mean to us. We need your continued prayer for Nathaniel. We want you to feel a part of Nathaniel's story and how it represents God moving in the world today. On August 10th we will begin shipping our first batch of TEAM NATHANIEL/HOLD MY WORDS bracelets. Pre-orders can be placed below.

Back to Ohio in August and an Offer You Won't Want to Miss

I received a phone call last week confirming dates in August that we will return to Ohio. Nathaniel has been accepted as a patient at Cincinnati Children's Hospital Aerodigestive Center. We will be in Cincinnati for a week, August 17-21 for his initial evaluation appointments.

Why Cincinnati Children's?
Short story: It is the world leader in pediatric airway reconstruction. Skip to the bottom of this post for the offer.
Long Story: read on.

Vacationing in Lakeside 2015 - Part Two

I know Nathaniel's private duty nurses and therapists are watching the blog for information how he is doing on the trip. My first Lakeside post was read and shared far more than I expected, but I doubt it gave Nathaniel's people back home the nitty-gritty details they want. Here you go, Team Nathaniel. This one is for you.

Nathaniel's week in four words: He is doing great.

Vacationing in Lakeside 2015 - Part 1

I can walk you past four generations of Lakeside cottages on my father's side of the family and three generations worth on my mother's side. "A Place Like the Whole World Ought to Be" was the slogan I heard repeatedly as a child of my hometown on the shore of Lake Erie. Most people experienced the Lakeside Chautauqua for a week of vacation; I became a year around resident at age eight when my parents divorced. When a child grows up in the place the whole world ought to be like, she thinks differently of the world. Every time I come home I realize a bit deeper how place influences who we are and who we become.