Five Things I Have Learned Transitioning My Son from G-Tube to Oral Feeding

I typically use Nathaniel's quarterly GI appointment as a reason to write about his progress transitioning from g-tube to oral feeding. I skipped writing about April's appointment because there was nothing spectacular to share.  Nathaniel's extended PICU at the end of February required us to return to full g-tube feeds. He lost two pounds while sick and had no desire to eat orally when discharged. I write a bit about that recovery here.

I probably should have written about feeding through that season. The ebb and flow between success with oral feeding and relying on the g-tube has been very much a part of the transition.

July Backyard Visitor: Fireflies

When we decided to homeschool this year, I did not want every piece of our day to be remedial and fixing weaknesses. I wanted to do something that built on Nathaniel's strengths and things we enjoy. His receptive language skills are fantastic. He loves stories. He loves being outside. This intersection is where I am building some fun learning into our day.

"Backyard Visitors" is the name I am giving to our nature study. We are learning about one animal a month through children's literature, crafts, and time outdoors. We are working on core AAC vocabulary. The first critter that we learned about was the firefly.

Visiting New Mexico and Climbing Mountains

I drove nine hundred and fifty miles across Missouri, Oklahoma, Texas, and New Mexico earlier this month. Rich and I won big at the only lottery we have ever played - the timing of a trip to Philmont High Adventure Scout Ranch. Scout troops put their request for a trek in a literal lottery eighteen months in advance. Josiah and Rich headed west by train with others from our local troop mid-June. Our personal win? Their one hundred mile backpacking trip ended on July third, the day before Andrew would participate in the 95th Maverick Club July Fourth Rodeo in Cimarron, New Mexico. Philmont sits just a few miles outside of Cimarron. Andrew took a full time cowboy position with the Scout Ranch last September. The opportunity to visit Andrew, see the guys come off the trail, and watch the rodeo called me west.