Therapy Support Found for Pediatric Use of an Eletrolarynx

Nathaniel and I left his Cincinnati Children’s Hospital check up last May with an interesting recommendation from his ENT: look beyond the pediatric community for information and support. I had arrived with questions about Nathaniel’s options for voicing. They shared of another patient with a laryngotracheal separation who learned to use esphageal speech. They also expressed a great deal of hope that given the right support, Nathaniel had a good chance of voicing.

Scarred Daffodils And A Little Boy

I’ve been watching the daffodils in my yard cope with a slow coming spring. They sprouted up fast after a few warm days in February. Then it turned cold again, snowed a few times, and they stayed at their four-inch height for close to a month. They doubled in height this last week, and now have buds. But evidence of enduring the extra weeks of harsh weather remains in the dried and browned ends of the leaves.

Let's Talk ATVs

Yesterday on the way to speech therapy, Nathaniel was telling me about ATVs.

He said, “ATV Nathaniel orange ride out that it go that”

I showed his speech therapist, and he came out of the session an hour later with the drawing shown in this photo. Amazing, huh? Look close. The rider even has a trach. Thank you R for making these connections with Nathaniel.

Today we started a predictable chart writing exercise to work on the syntax of how to say “I like (color) ATVs.” Of course I expected Nathaniel to say that he likes orange ATVs, but today he likes white ATVs.