Augmented Alternative Communication and Bible Verse Memory

Augmented Alternative Communication and Bible Verse Memory

Kim Rankin
AAC, Our Family

For the last three months, Nathaniel has benefited from a very brief time of rote drill or recitation with me every morning. Using his talker, we count to ten, say the ABC's, and practice questions and appropriate responses. For example, I will ask, "What is your name?" to which he selects the one button on his device to respond, "My name is Nathaniel." Drawing on this skill yesterday when we were at a Labor Day picnic, he introduced himself to new friends. Within the last month he has shared his name with strangers at a playground. I do not believe these small social steps would be taking place if we were not working daily to recite.

Just as young children frequently memorize nursery rhythms and songs through repetition, the preschool years are often the time when children raised in Christian homes begin to learn their first Bible verses. Spiritual growth is as important to us as Nathaniel's emotional, physical, cognitive, and social growth. For generations of Rankins, the tool to encourage spiritual growth has been memorizing Bible verses. As a child and young adult, my husband memorized Bible verses weekly using Bible Memory Association, now called Scripture Memory Fellowship. Our children memorized Bible verses weekly through participating in the AWANA program. When they were small, we memorized the Sermon on the Mount as a family. We used motions, not American Sign Language, but our own creative fine and gross motor movements to help with the memorizing. The children were three years old to eleven years old when we recited the chapters of Matthew as a family standing in front of our church congregation. I have sweet memories not only of their incredible ability to learn and share long passages of scripture, but of working together daily after breakfast on the verses. The discipline of daily scripture memorization was formative to the children's minds and characters; the words they memorized had value to their souls.

Finding Our New Pace

Finding Our New Pace

Kim Rankin
Our Family, Parenting

"What if adopting Nathaniel means you can no longer do the things you enjoy doing as a family or individually?" asked the adoption case manager during our staffing interview.

Rich has just finished explaining his and our older boys' involvement in Boy Scouts of America, including the three backpacking trips to Philmont High Adventure Camp. There were fourteen individuals sitting around the table participating in our interview. They had interviewed other couples before us. They were charged with the task of selecting Nathaniel's forever family. Prior to this question, they had described Nathaniel's medical conditions and the many concerns physicians had for his future. The adoption case manager had explained that it was uncertain if Nathaniel would ever walk. "What if he can't hike and go backpacking with you?" the she pushed Rich a bit more. Nathaniel took his first steps nine months later, just a few months after we finalized his adoption.

The Water Bottle and The Loneliness

The Water Bottle and The Loneliness

Kim Rankin
Parenting, Lessons I've Learned

Nathaniel climbed through the van door and scooted past his car seat to grab his water bottle. We had stopped at park near home after therapy; we were leaving for home. "Thirsty Buddy?" I asked. He nodded, opened the folded yellow straw top, and tipped the bottle up. A drop of water dripped down his chin. We have been working on drinking since February. I have bought countless cups and water bottles. Some with lids leak on the cup side. Some with no lids leak on the Nathaniel side. Some seem to fill his mouth quicker than he can swallow and the leaking comes from his lips. I had high hopes this new one would work. Nathaniel handed me his cup and crawled in his car seat. I wiped his chin, buckled him, handed back the cup, and prepared to leave. I had high hopes the first drip was an opps. Before the van was to the park entrance, I had to pull over. As he continued to drink, water continued to drip down his chin and into his stoma causing him to cough and needing suctioning.

Hello from Cincinnati... Let's Have Cake

Hello from Cincinnati... Let's Have Cake

Kim Rankin
Airway and Respiratory, Oral and Tube Feeding

had a heavy heart Monday evening when I merged from Interstate 74 south to 275 east. I do not need a map to get to our Cincinnati hotel anymore. I know this city well. We walked into the lobby, and Nathaniel started to cry. He was inconsolable through the check in process and worse when we got to the room. He stood frozen halfway between the bed and the door, held his trach and cried. I had to wipe tears too. Everything about arriving in southern Ohio for another group of appointments felt hard and heavy and sad to both of us. We've done this a lot in the last year. Many of the visits produced physical pain and difficult news. Neither of us wanted to be here.

In the process of settling into the room, Nathaniel's g-button was pulled out. My twelve-year-old niece was in St. Louis last week for her annual "Camp Rankin" visit, and I asked her parents for a second week so she could be my travel companion. She is brave beyond her years. She responded quickly and confidently to instructions and helped to reinsert the button. Nathaniel laying on the floor without his shirt led to tickling and giggles. Ellie is old enough to be a fantastic mother's helper and young enough to be a buddy to Nathaniel.

How I Prepare for Our AAC Consultations

How I Prepare for Our AAC Consultations

Kim Rankin
AAC

We meet with our AAC team Wednesday afternoon for one of our quarterly consultations. It will be a transitional meeting for Nathaniel as his weekly speech therapist is anticipating a new baby soon. Nathaniel and Miss Rebecca had their last "before baby comes" session yesterday. (Many blessings to you and your little one, Rebecca!) Our therapy plans for the fall include continuing in Development Language Group two mornings a week and private therapy (Occupational and Speech) one morning a week.

As I prepare for our AAC meeting, I am again shuffling papers, making lists, and thinking about goals I have for Nathaniel's language growth. I reflect on times Nathaniel experiences communication frustrated as that often indicates areas that need solutions and work. This document, Language Functions & Early Generative Language Production by Gail M. Van Tatenhove, PA, MS, CCC-SLP, was given to me very early on in Nathaniel's AAC journey. It continues to be a help when I prepare for our AAC meetings. I revisited Tatenhove's word lists and compared the list to open words on Nathaniel's device. I have created a list of words that I feel we need to work on learning.

Printing and Using Low Tech Talker Symbols - Part 2

Printing and Using Low Tech Talker Symbols - Part 2

Kim Rankin
AAC

I shared earlier this week how I print low tech version of Nathaniel's talker symbols. (Read here.) Just as a reminder, Nathaniel uses Speak for Yourself. The symbol set is called Smarty Symbols and I use Custom Boards to create printables. Most of the time, that has worked flawlessly for me. Occasionally, I can not find the correct symbol on Custom Boards. I have asked some questions behind the scenes of both SFY and Smarty Symbols folks and learned that yes, some symbols used when SFY was originally developed are not currently available. I use the following options when I am unable to find the SFY symbol on Custom Boards.

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