I see a trend when I look at photos from this week. Nathaniel continually has his head down on the table or is laying down. He is still not feeling well. I have been advocating for a clear diagnosis of a respiratory infection for three weeks. I think we finally have a treatment plan. However, it is late Friday afternoon and I'm still working with the pharmacy and doctor's office to get the medication we need in a form that is easy for Nathaniel to take. We have not needed his g-tube for anything, including medications, since early June. It seems this illness might require using the tube again.

Nathaniel's medical conditions stole time from being a student this week. He has recently experienced some complications with his trach stoma, and we think he might have a respiratory infection. Thankfully, we've managed at home, which is a huge improvement for this kid who used to need ICU support for minor viruses. But we've been to the doctor a number of times and have added additional treatments to our routine. He hasn't been sleeping well, which means I haven't slept well.